Being in Pain in Public

A person where “pain spots” are highlighted.
The joints, head, back, etc.

Lately, I have been having trouble with back pain and have always struggled with sporadic headaches and migraines at times. As I have been taking this course I have been paying more attention to how I feel in my body or, in this case, how I hide or joke about how I feel.

It Hurts So Good! Hot Sauce Review

It Hurts So Good! Hot Sauce Review

This past weekend, I was strolling through the mall when I saw a particular bottle of a menacing seeming liquid at some store that I can not now remember. The image upfront was a glittery yet jittery image of a clown that is smiling yet looks bloody and angry. His name was the “Fiery Fool”. And he was quite an interesting addition to the Hellfire Hot Sauce brand.

In an air of competitiveness, this brand claims that this was “THE HOTTEST SAUCE IN THE WORLD WITHOUT EXTRACT”! At first I brushed it off as more exaggerated marketing to the extreme but then I realized that I had just heard about this phenomenon in a recent Gender Studies class. I bought this at $14.99 but for the low low price of $14, you too can feel the pain.

And you better believe that you will feel the pain. In fact, after trying a few small drops, I was in agony. It was like eating liquid lava. And this is coming from somebody that normally puts half a bottle of regular hot sauce on anything. Was this an example of the “extreme culture” that Mary Kosut was talking about? I believe so. According to her analysis, “extreme bodies engage in practices and regimes that push beyond the mundane or acceptable”. Although this might seem tame in comparison to the examples she mentions such as body suspension, this fire sauce that burns you inside was definitely not mundane. And it was definitely not exactly societally acceptable either. Of the 5 friends I asked, none of them wanted to try it. Even just the labeling scared them away. Spicy foods and spiciness definitely can relate to her definition of extreme as challenging to “the body’s limits and borders”.

But why would anybody choose such a life of burning and crying? Kosut can answer. Extreme experiences, in her view, are “uniquely carnal and sensate”. They represent our feelings and maybe even our motivations “to take charge of one’s life and body, and to defy comfort zones”. There is pleasure in the struggle and the pain. On a more scientifical level, research has shown that spicy foods elicit the release of dopamine and endorphins, making us happier even when the pain seems unbearable, confirming this as true. Personally, even though I felt like I was going to die, it was a good type of pain. I might have died but I felt like I achieved something by taking the sauce and I could die happily…

In my view and in the view of Kosut, there is a reason why these extreme products are so highly marketable in an extreme kind of way. “They purport to offer an embodied experience that involves intense engagement of the senses that is beyond ordinary.” After experiencing this hot sauce, as it really was an experience, I know that that is the kind of experience I would pay for. This hot sauce appeals to society in this way and it doesn’t bluff.

I would urge anyone to try this hot sauce. If you would like to try some, you could ask me as well!!!

On Pain Meds and Brain Meds

I get the impression that most people don’t put much thought into over the counter medication. Other than the warnings on the bottle about not taking more than a certain number in a certain amount of time, these drugs are considered “safe”. You take them when you have a symptom to relieve, you stop when it goes away. It wasn’t until I started taking prescription medication for my mental illness that I realized how much I take OTC meds for granted.

When I first started taking medication one of my friends looked up as much information on my meds as he could find. One of the things he looked for is other things I could and could not take at the same time. And one of the things on the no-no list was NSAIDs.

Continue reading

Number 1 excitement

I struggle to type (I’m a great typist, 88 wpm, not to brag or anything) that I suffer from chronic illness.  I have an idiopathic immune system “issue” that makes my body more susceptible to bacterial/viral infections.  Despite being more wordy, for whatever reason, that’s a lot easier for me to type.  So basically, I get sick. A lot.

Continue reading

I was invisible, but I am not that girl anymore

I have to write once more for this blog for my grade. I’m highly motivated by grades, so despite feeling as though I have nothing to say, here I am, typing. I thought maybe I’d write about how we adjust to our unique bodily abnormalities (I don’t love this word, but I’m at a loss for another). I thought about sharing my husband’s experience of processing the bodies of fallen soldiers in Iraq and Afghanistan, the forced emotional detachment he took on as body after body found its way on a table before him, waiting to be readied to head home in a plain wooden box, back to the states and no doubt a family that would never recover their loss. I thought about sharing the moment my friend, whose son died an hour after birth, told me she can’t bear to hold sleeping babies because it feels too much like holding a dead baby, and how that statement, so matter-of-fact for her, knocked the wind out of me and ripped a hole in my heart for her, right beside the one that grew as her belly swelled with the baby we both knew wouldn’t survive. Somehow, none of these felt like things I wanted to share. And as I stared at the screen, thinking, “I have nothing to say,” I recalled (with the help of some online diary entries) a time in my life when I had the reverse problem: so, so much to say, and no one to listen. And I knew. Despite how very little (very, very little) I want to share this story about myself, I need to. I owe it to my own slow recovery, the future of my children, and the potential readers who’ve maybe been here too. So, here we go.

*Deep breath* *Deep breath*

I don’t generally ascribe labels to myself (they are relentlessly negative), but most people who know feel comfortable placing “emotional” over my picture. It’s a fair assessment. As long as I can remember, I’ve been an emotional girl/woman. I cry a lot, sometimes for justified reasons (see above), sometimes because I’m easily overwhelmed by emotions. I hurt a lot, and for me, emotional pain is easily manifested physically. In times I’ve had my heart broken, I have felt an ache in my chest that made it hard to breathe. It is this essential truth about me that led me down the path of self-injury. And this truth that kept me under its weight for over 10 years. If you need a trigger warning, consider yourself warned. There won’t be images, but this will probably hurt.  Continue reading

The limits of pain; the creation of a unique desire

My back hurts. Every day, all the time. For the last five or so years, I have shifted in my seat every few seconds, taken the elevator to the second floor. I have declined invitations to go hiking or biking, trips I normally would have jumped at the opportunity to participate in. Sitting and standing and lying down are mostly unbearable, which really sucks, because those are pretty much the basic three positions my body can be in.

Sciatic_notches

Ouch.

Continue reading

Moving Through the Space of Work & School

So, once again i’m here to talk about my fibromyalgia

*cue the violins*

mr krabs

haha but really this past week was very interesting.

Let me explain why.

So Friday before last I woke up and i just couldn’t bend my wrist. At first I thought I just slept on it at a weird angle and figured I could stretch it out and continue about my day. As the day progressed it only got worse. It became difficult to lift anything and driving to work was pretty painful. When I got to work one of my managers helped me out and wrapped it with gauze and tape then used a coffee sleeve  as a splint (innovation at its best!) to keep it from moving. Now while this did limit my movements it did not stop the pain that was radiating from my wrist.

Lifting plates and holding cups, swiping credit cards and reaching for change in my pocket was all so painful now. Unfortunately for me I had to stay and work the rest of my shift. Before I left I took 2 tylenols to help. But it only slightly numbed it to a tolerable level of pain. This problem persisted through the entire weekend. Let’s just say it was one of my harder weekends at work. But I made it through and made a doctor’s appointment for Tuesday bright and early.

Now I was originally diagnosed with fibromyalgia in 2010 by a doctor who worked as an arthritis and pain specialist. As i mentioned in my last blog post, he prescribed me two medications. One prescription was illegible but the one I could read turned out to also be used as an antidepressant and i didn’t feel like risking the side effects. To this day I have not been using a doctor recommended form of treatment. Just yoga, acetaminophen and willow bark for the pain. Lately i’ve realized that maybe that’s just not enough. I need to be able to use my wrist and considering i’m going on week 2 of pain, I need a solution fast.

So I met with a doctor at University Health Services and explained to her that I needed blood work done to be absolutely 100% positive this was indeed fibromyalgia so that I could in turn take the appropriate course of treatment to manage it and keep it in check. She understood my desire for a medical plan that did not involve former antidepressants as treatment. So she drew a bunch of blood and prescribed me anti-inflammatories. Her theory is that my body is producing too many inflammatory cells and sending them to my joints. I’m supposed to take them for 2 weeks and see if they help. In the event that they do, she wants me to stop taking them and if the problem persists, I will be sent to a specialist to determine why my body is sending so many inflammatory cells throughout my body.

Now because my wrist isn’t what it should be, I went and bought myself an Ace bandage to help minimize movement and reduce pain by stabilizing my wrist.

IMG_2232

It’s interesting to see how people react to me now. Most people just stared at my brace and made comments like “you’re a woman of many talents” when i still managed to balance 3 plates. Only a few brave souls have been bold enough to ask me what happened, many exclaiming upon my explanation “aren’t you a little young for that?” To which i reply “yeah but i’m like a 75 year old woman trapped in a 22 year old body” and everyone laughs…. but i’m not even kidding. I literally feel like this old creaky body struggling to get up the stairs or even out of bed in the morning. One of my coworkers told me Sunday it breaks his heart to see me like that because usually we just joke around about my fibromyalgia when i’m really feeling it after a long day but seeing the brace on my wrist “made it all so real.”

Who knew that this simple black bandage could affect the way people perceive my ailment. I’m wearing a knee brace most days but since people can’t see it, it doesn’t exist to them. Something can’t be real if it doesn’t exist, right?